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specialist centres

For patients and families

Introduction to porphyria
Acute porphyrias
Congenital Erythropoietic Porphyria (CEP)
Erythropoietic Protoporphyria (EPP)
Porphyria Cutanea Tarda (PCT)

For healthcare professionals

The Porphyrias
Laboratory diagnosis
Investigating the family
Treatment
Pain Management
Congress Abstracts
EPNET experts

Drugs and acute porphyrias

Background information
How to use the information?
Common prescribing problems
Selecting a drug

About EPNET

About EPNET

News

Porphyria international conference, Cardiff 2011
Rare Disease Day 2012

Newsletter

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Last update: May 2011